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Posts Tagged ‘News’

ALS affects any race or gender, profession or creed. Players & Coaches from the NFL are standing together to find a cure.
Join the team!

The ALS Association today released a new video that raises awareness of the connection between ALS and military service.
The video, found below:

which can be also be viewed on our website at www.alsa.org and on our YouTube channel at http://www.youtube.com/thealsassociation, highlights the research which has found that our military heroes are twice as likely to develop ALS as the general public. The video is part of a nationwide awareness campaign that The Association has launched in advance of Veterans Day on November 11.
Additional videos will be released in the coming weeks and The Association will conduct other awareness and outreach activities that draw attention and support to our cause.

To learn more about our Veterans Day Awareness campaign, go to our website, http://ow.ly/79CVS. While you’re there, visit the Wall of Honor and read the powerful stories of courage posted by veterans with ALS, their families and survivors.

I hope you are all staying cool in this CRAZY heat! With their permission, I wanted to share these two e-mails from two families that were able to attend the National ALS Advocacy Day in Washington D.C. this year, over Mother’s Day weekend. They were able to attend, due in large part because of the donations raised at the 2010 Max’s Ride IV. Please read below:

Thank you SO much for making it possible for my husband Roy and myself to attend the ALS Advocacy Conference in Washington, D.C. Roy has ALS and is a veteran. Going to Washington, D.C. was a wonderful experience for both of us – hearing about the research being done, meeting so many new friends who are also suffering from this horrible disease, and meeting with legislators, many of whom were very sympathetic and will hopefully further our cause. Without your generous support, this would not have been possible. So thank you from the bottom of our hearts, and bless you in all your endeavors.

Sincerely,
Jeanne B

I want to send a huge thank you and a big hug for the biggest blessing that you gave me. That blessing was to share my story of my sister Elizabeth Ann Nelson. What an incredible experience it was to share my story with everyone. I made a portfolio that I carried with me everywhere and I took that with me. Losing her in January was very hard for my family but with your help you gave me the courage to keep her story alive and to share it with so many people. Although this trip was filled with tears my sister’s memory will continue to be in my heart and now in the heart of others and how this disease strickens so many people. I learned so much over there and having the opportunity to speak with members of congress knows that as we work together to find this cure we will continue to fight and never give up. This trip made such a huge impact in my life. Her two sons and her husband that she left behind were crying when I told them I was going to get this experience to share her story. Leaving on mothers day had such a huge impact also a day they will always miss with their mom. Thank you again for everything and know that anyone that goes on this trip such as myself puts a fire in our gut that we have to keep fighting everyday to find a cure.

God Bless You Whitney and again thank you.
RoseMarie G

Max’s Ride V raised an additional $14,500 for the ALS Association-South Texas Chapter! Together we do make a difference! Thank you so much for your continued support in the fight to Defeat ALS!!! Please keep in touch and remember, feedback is always appreciated!!!
~Whitney

Save the Date: April 21, 2012 Max’s Ride ALS VI

Newly remodeled web site launched March 1, 2010 just in time for the 4th Annual Max’s Ride.  New to the site besides the format is the online opportunity to become a Corporate Sponsor, Register as a Rider, Order Concert Tickets and make donations throughout the year.

A sincere thank you to Eric for his years of time and talents on establishing and updating our awesome web site.

We’d like to welcome Rudy as our new Web Master!

This site is a constant work in progress and we are super excited about the remodel!  Thanks for browsing and be sure to check back often or subscribe to our RSS feed!