Archive for the ‘Advocacy’ Category
I’m sure many of you are wondering what the big who ha is about on this ALS Ice Bucket Challenge. Well, since Max was diagnosed in April of 2002 we have had some minor annual media coverage on ALS. Persons diagnosed traditionally lose their battle in 2-5 years, and it is very hard to keep the topic of ALS on the forefront of peoples minds unless they have been personally touched by this beast. Prior to Max, I admit, I knew of “Lou Gehrig’s disease” but had no real clue. Since Lou Gehrig’s farewell speech over 75 years ago, very few breakthroughs in testing, research or treatment have occurred. ALS is an extremely unknown and underfunded disease. Max’s did all he could from the date of diagnosis until his death to raise awareness and funding.
I’ve seen many amazing people die because of ALS and it is awful every time. I have not grown immune to the hardships and unfair product of ALS and I never will. This ice bucket challenge is doing so much in raising awareness and much needed funds so Thank You All! We hope for a cure and until then we will continue to fight for those who are no longer able. Together we do make a difference! Who would have thought the difference a little ice water could make.
Keep those challenges rolling, the donations coming in and KEEP ON SMILING!!!
As Veterans Day approaches I wanted to take a moment to THANK all of our Veterans, Active Military Personnel and your families for the dedication, service and sacrifice you’ve given to protect the freedoms of the United States of America!
I am truly honored that through the years many of our riders, sponsors, volunteers and donors have been Veterans and Active Military Personnel. All of us associated with Max’s Ride for ALS Research and Patient Services will continue to play our role in raising awareness of the Military connection in the increased number of ALS diagnosis among our Veterans.
Our fight to strike out “The Beast” of ALS is far from over but we will continue the battle in honor and in memory of those who are no longer able.
George S. Patton ~ It is foolish and wrong to mourn the men who died. Rather we should thank God that such men lived.
We thank God for so many!
Take Care, Be Safe & Thank You Veterans!
Max’s Ride VI~April 21, 2012
The ALS Association today released a new video that raises awareness of the connection between ALS and military service.
The video, found below:
which can be also be viewed on our website at www.alsa.org and on our YouTube channel at http://www.youtube.com/thealsassociation, highlights the research which has found that our military heroes are twice as likely to develop ALS as the general public. The video is part of a nationwide awareness campaign that The Association has launched in advance of Veterans Day on November 11.
Additional videos will be released in the coming weeks and The Association will conduct other awareness and outreach activities that draw attention and support to our cause.
To learn more about our Veterans Day Awareness campaign, go to our website, http://ow.ly/79CVS. While you’re there, visit the Wall of Honor and read the powerful stories of courage posted by veterans with ALS, their families and survivors.