5th Annual Max’s Ride & Concert for ALS Totals

Today I was honored to inform the ALS Association South Texas Chapter that Max’s Ride and Concert V will be turning over $14,500 in donations. Thank you everyone!!! With a portion of last years donations, ALSA STX was able to send families touched by ALS to Washington D.C. for ALS Advocacy Day. I wanted to share with you all the response received today from Executive Director of the South Texas Chapter, Bonnie Walsh:

This is FANTASTIC, Whitney!!!! Thank you so much for the tireless energy and countless hours you put into this event for the ALS community. No words can express our gratitude. You and your spectacular group of volunteers never cease to amaze me. Thank you doesn’t seem like enough, but Thank You. I do hope that we made you and your group of volunteers proud last week in Washington D.C. , I know my heart was over flowing with pride and hope, when we walked from office to office in on Capitol Hill pleading our case and telling our stories. Our PALS and CALS were so powerful and were so thankful and proud to be there representing their brothers and sisters who have fought and those who continue to fight this horrific disease. Of the 12 meetings we had with our Senators and Congressmen these are the ones who said they would positively support and sign the Dear Colleague letter to the Appropriations Committee to approve the $15 million from the Department of Defense for ALS Research and $10 million to continue the National Registry Program to help compile national information on people who are living with ALS to try and help find a cause and cure;

Congressman Silvestre Reyes
Congressman Charlie Gonzalez
Congressman Lloyd Doggett
Congressman Henry Cuellar
Congressman Michael McCaul

Strong Possibility they will sign on are;

Senator Kay Bailey Hutchinson
Congressman Lamar Smith
Congressman Michael Conaway

Without Max’s Ride our patients voices could not be heard in the fashion it was this year. This was the first we have ever take 2 families and a living sibling to tell their stories to this many Representatives in our history of attending this conference. Because we had such a large and powerful group we were able to deliver the message to the Houston delegation as well. The Greater Houston chapter was unable to attend this year and we were able to pick up their slack and let our voices be heard in their offices as well. South Texas was all over the halls of congress making noise!! Needless to say, our PALS have got be to exhausted, my hats off to them and you, Whitney. Thank you to Max’s Ride for making this trip to advocate for our military men and women who are 2 1/2 more likely to be diagnosed with ALS, just for defending our country. We must stop the madness of this disease and you are helping us do that……..again, Thank You doesn’t seem like enough……..

Bonnie Walsh
Executive Director – ALS Association South Texas
210.733.5204 (voice) 210.845.7714 (cell) www.alsasotx.org

Again, thank you all for your participation in the fight to defeat ALS! We continue the fight in honor and in memory of those who are no longer able.
Take Care and Be Safe
Whitney
www.maxals.org
Check out our 2011 Max’s Ride V pictures on Facebook https://www.facebook.com/pages/Maxs-Ride-for-ALS/143331842382324?ref=ts